Stop TB Partnership

TB Human Rights Discussion Group

To End TB, we must have a response that is people centered, human rights-based and gender responsive. We must build a global movement which demands the promotion and protection of human rights in all aspects of the TB response.

In 2018, the Stop TB Partnership established a TB and human rights discussion group that meets virtually each month. The purpose of the discussion group is to unpack, explore, strategize and coordinate on key issues, challenges and opportunities for advancing a human rights-based response to tuberculosis (TB). Participants are from all regions of the world and include people affected by TB, civil society activists, lawyers and human rights and gender experts.

If you are a human rights champion, we hope that you can join the discussion group and help advance TB policies and programmes that promote and protect human rights. If you would like to join the group or have suggested topics for discussion, please email jamesm@stoptb.org.

The specific aims of the discussion group are to:

  1. Explore human rights issues, including human rights violations, gender equity, stigma and discrimination, community monitoring, universal access for TB key populations and people affected by TB, community engagement among other areas;
  2. Analyze and overcome barriers and challenges experienced by people affected by TB through strategizing on effective responses and solutions to advance a human rights-based and gender-transformative TB response; and
  3. Capacitate and mobilize TB affected communities and human rights activists as part of a unified global movement to shift the paradigm and realize a people centered, human rights-based and gender transformative TB response.

Recent TB Human Rights Group Discussions:

Blurb Link to Recording & Relevant Resources
TB Civil Society and TB Affected Community Consultation on post 2021 Global AIDS Strategy
TB remains the biggest killer of People Living with HIV. Prevention, screening, diagnosis and treatment of TB among PLHIV is therefore a priority for both HIV and TB responses.

UNAIDS has been tasked to develop the next global AIDS strategy post 2021. The strategy will build on the significant gains already made and will accelerate the pace of action—it will be ambitious, visionary, and evidence-informed. The new global AIDS strategy will serve as a road map for the world to end AIDS as a public health threat by 2030, guiding key stakeholders to overcome the challenges and to ensure effective country-led AIDS responses.

UNAIDS has invited Stop TB to contribute to this process and we are consulting the TB affected community and TB civil society to inform our inputs. Two consultation sessions were held, led by Tina Boonto (UNAIDS), Lucica Ditiu (Stop TB) with Meirinda Sebayang and Maurine Murenga as voices from the TB affected community and civil society.
UNAIDS Consultation - Audio file 1 (Morning)

UNAIDS Consultation - Audio file 1 (Afternoon)

Tina Boonto, UNAIDS

Lucica Ditiu, Stop TB Partnership

UNAIDS post-2021 strategy - TB affected community & civil society consultation brief
TB & Prisons
With over 10 million detained of their liberty globally, and with many prisons currently holding over three times their capacity, understanding health in prisons and other detention settings, is critical for the TB response. Speakers from South Africa, Brazil, Azerbaijan, and Kenya discuss human rights, TB and prisons and the need for people deprived of their liberty to have access to quality health and TB services for prevention, testing, diagnosis, treatment, care and support. The explore examples and tools of what a rights based response to TB in prisons can entail.Speakers include: Justice Edwin Cameron, (formally of the Constitutional Court of South Africa; Dr. Lucica Ditiu, Executive Director of the Stop TB Partnership; Karabo Rafube, a advocate, former inmate and TB Survivor; Harry Hausler, TB/HIV Care South African; Pollyanna Alves, National Justice Council of Brazil; Elchin Mukhtarli, Saglamliga Khidmat Azerbaijan; , Lisa Owina and George Mutina, KELIN Kenya. Audio file

Harry Hausler

Pollyanna Alves
TB & Gender
The UNHLM TB Political Declaration includes commitments to gender equity and gender sensitive TB programming. This webinar provides a snap shot country efforts in India, Tanzania and Nigeria to strengthen national TB programs through integrating gender sensitive policies and programs. The webinar begins with introductions from Lucica Ditiu and Marina Smelyanskaya from Stop TB Partnership emphasizing the importance of integrating gender in TB responses and highlighting that understanding prevalence is just one part of a discussion which must also include issues of access to services, behavioral and cultural norms and the implications for health. Olayide Akanni, Journalists Against AIDS, then discussed the comprehensive Nigeria Tb Gender Assessment and its basis in informing the Global Fund Funding Request. Dr. Emmanuel Matechi from the NTP in Tanzania next engaged and discussed the important role civil society had played in helping the NTP to develop a national CRG Action Plan – building on the national TB Gender Assessment. Anupama Srinivasan, REACH India, then explains how in India the TB Program has developed a gender sensitive framework to further integrate TB in to the national program and Kitso Phiri, from BoLAMA calls on us to reflect on the relationship between gender and key populations – with a particular focus on miners and their families. Heather Doyle from the Global Fund CRG Team then reflected on how the progress of gender in TB has been reflected in Global Fund Funding Requests and what more we can together to further strengthen. And, to conclude, Anna Versfeld discussed the development of a Gender Investment Package that will provide programmatic and budget advice for countries to further integrate gender into TB programs, including through Global Fund grants. TB & Gender Discussion Group Audio file

TB REACH Gender and TB for HR Webinar

Strengthening gender in the TB response of Tanzania

AS Gender

May 2020 Gender and TB
The Universal Periodic Review
The UPR and the Human Rights Council are existing mechanisms where civil society can engage UN members states regarding human rights concerns, including UN High Level Meeting Political Declaration on TB commitments. Discussion featuring Nicoletta Zappile, UPR Info Org, Gisa XX TAG and David Ruiz, Aidfonds UPRSessions.aspx

UPR_3rd_cycle.pdf

Pre-sessions

UNHLM Targets & Commitments

Human Rights and TB call on
TB and the UPR 19 March 2019.zip
TB & People with Disabilities
People with disabilities face many barriers accessing health and TB services. Mental health support, and rehabilitation and reintegration into communities require more attention. Speakers: Michael Miiro, MADIPHA; Mike Frick, TAG; Louie Zepeda, Philippines; Stefan Radut, ASPTMR audio_only.zip (6 February 2019)

TB & People With Disabilities : Recommendations
The Nairobi Strategy on TB & Human Rights
The Nairobi Strategy is a framework for realizing a human rights based TB response. Speakers include Timur Abdullaev, TBpeople; Allan Maleche, KELIN; Brian Citro, North Western University Nairobi Strategy on TB & Human Rights Brief

Nairobi Strategy on TB & Human Rights Full

Progress Report 2016-2018 - Nairobi Strategy of TB & Human Rights
Litigation, TB and Prisoners as Key Populations
Litigation is an avenue of addressing human rights violations. In Malawi, litigation has commenced to protect the rights of universal access for people in prisons. Discussion from Lynette Mabote, ARASA, Thoko Nkhoma, FACT and John Stephens, O’Neill Institute Key Populations Brief - Prisoners

TB in Prisons : A people’s Introduction to the Law
National TB Laws & Human Rights
National TB Laws and the promotion and protection of human rights, featuring Brian Citro exploring key considerations for TB laws, Kitso Phiri on the place of marginalized communities, particularly miners, Stefan Radut on the perspective of TB survivors and the experience in Romania, Mara Quesada unpacking TB and HIV laws in the Philippines and Cintia Dantas describing the role of Global TB Caucus and MPs in taking forward the priorities civil society and affected communities. audio_only2.zip (March 2019)
Access to drugs & diagnostics
TB drugs and diagnostics must be accessible, affordable, safe, quality and affordable. This ought to be irrespective of where someone lives or how the identify. This discussion has a focus on India and features: Sreenivas Nair from Stop TB Partnership - overview; Leena Menghaney, MSF advocacy campaign on bedaquiline; Nandita Venkatesan - what access means from the perspective of a TB survivor; Mike Frick, TAG exploring opportunities for reforming models of public investments; and Kajal Bhardwaj, co-author of the India TB Legal Environment Assessment, contextualizing the entire discussion in a human rights framework. Access to drugs & diagnostics.zip (May 2019)
TB Community Champions Knowledge Exchange Webinar (Philippines and India)
TB affected communities and civil society are at the heart of the TB response. To end TB we will need to invest in the capacity, coordination and participation of TB affected community actors in all parts of the TB response. In this Human Rights Discussion Group, join REACH India, ACHIEVE Philippines, National TB Programs in India and Philippines, USAID, WHO and Stop TB, for a knowledge exchange on TB Champions, and how to continue to grow the movement in India, and how Philippines can learn from the experience in India - to build a strong and resilient TB affected community movement for change.

Speakers included Mara Quesada (ACHIEVE), Dr. Celine Gardfin (NTP Philippines), Dr. Ramya Ananthakrishnan (REACH), Dr. Lucica Ditiu (Stop TB Partnership), Amrita Goswami (USAID India), Anupama Srinivasan (REACH), Himani Verma (TB Champion India), Sheet Kumar (TB Champion & TEJ Network India), Dr. Nishant Kumar (Ministry of Health India), Thomas Hiatt (WHO Philippines), Subrat Mohanty (REACH) and chaired by Dr. Sreenivas Achuthan Nair (Stop TB Partnership)
Webinar recording