Presenting the TB affected communities and civil society delegations to the Stop TB Partnership Board

12 March 2020, Geneva, Switzerland - In a first for the Stop TB Partnership, 33 TB champions representing TB Affected Communities, Developing Country NGOs and Developed Country NGOs constituencies, have been selected to support the affected community and civil society Board Members.

In January 2019, the Stop TB Partnership Board endorsed the initiative of the TB affected communities and NGO constituencies to establish delegations in order to improve communication and engagement, strengthen accountability and enhance institutional memory of the constituencies. The Stop TB Partnership Secretariat was charged to explore ways to support the delegation building process. This Board decision followed the UN High-Level Meeting (HLM) on TB, where world leaders committed to transforming the TB response to be ‘equitable, rights-based and people-centered.’

The four civil society and affected communities Board members with support from Stop TB Secretariat organized the process that led to the selection of all delegations members from Africa, Asia, the Americas as well as Europe and Central Asia.

In the lead up to the 32nd Board Meeting, Stop TB Partnership ensured that representatives of the delegations were part of the pre-Board briefings as well as a Strategic Dialogue on 9-10 December that brought together Board members, members of the Red Cross Red Crescent national society, representatives from Global TB Caucus and local Indonesian civil society and TB survivors.
Reactions

"We will only succeed with the full partnership and collaboration of the civil society and the people and communities affected by TB. We need you to continue to demand better care, better treatment, and a seat at every table when TB is discussed," said Minister of Health of Brazil and Stop TB Partnership Board Chair, Dr. Luiz Henrique Mandetta.
 
 “This was an important opportunity for Indonesia TB survivors to join the global discussion, to be introduced to delegations, to share our experiences, to build our knowledge and to strategize with TB survivors from around the world,” said Budi Herawan, POP TB Indonesia.

By establishing Delegations, we have taken an important step in ensuring our voices are heard and that TB affected communities to become leaders of the TB response national, regionally and globally,” said Thokozile Nkhoma, Affected Communities Board Member.

Austin Obiefuna, Developing Country NGOs Board Member, highlighted that the calls for human rights and communities, rights and gender (CRG) approach in TB more generally has primarily been coming from civil society and affected communities. “There is now much more discussion on CRG, and this extends to the commitments in the UNHLM on TB Political Declaration. We must leverage our enhanced coordination to increase investment in initiatives, including through securing funding for the ‘Communities for TB ASAP’ proposal, that will help to overcome social, legal and economic barriers to universal TB access.”

“We as delegations must take the next step to formalize our engagement, to continue to engage local partners -like we have done here in Indonesia- but to also build upon the support we have received from the Stop TB Secretariat and operate independently, “ said Olive Mumba, Developing NGOs Delegation.

“We will not meet our national and our global targets without civil society and affected communities. We must now leverage our three delegations to scale up community-led monitoring of TB programs, the advancement of scorecards which can celebrate improvements or challenges with TB data or policies or investments and advocacy to ensure that TB continues to raise the national agenda in all countries,” said Aaron Oxley, Developed NGO Board Member.

Membership of the delegations

Developing Country NGO Delegation
Names Organization Country of Work
Austin Obiefuna
(Board Member)
Afro Global Alliance Ghana
Amara Quesada ACHIEVE Philippines
Bertrand Kampoer DRAF TB Cameroon
Choub Sok Chamerun KHANA Cambodia
Márcia Leão Stop TB Brasil Brasil
Mayowa Joel Stop TB Nigeria Nigeria
Olive Mumba EANNASO Tanzania
Philip Wugeru NOPE Kenya
Stela Bivol PAS Center Moldova
Subrat Mohanty UNION India India
Developed Country NGO Delegation
Names Organization Country of Work
Aaron Oxley
(Board Member)
RESULTS UK United Kingdom
David Bryden RESULTS Education United States
Deliana Garcia Migrants Clinicians Network United States
Janika Hauser RESULTS UK United Kingdom
Katy Kydd Wright International Civil Society Support Canada
Olya Golichenko Frontline AIDS United Kingdom
Affected Communities Delegation
Names Organization Country of Work
Thokozile Nkhoma
(Board Member)
Facilitators of Community Transformation Malawi
Timur Abdullaev
(Board Member)
TBpeople Uzbekistan
Abdulai Sesay CISMAT Sierra Leone
Albert Makone Shiloah Zimbabwe
Carol Nawina CITAM+ Zambia
Dilshat Haitov TBpeople Kyrgyzstan Kyrgyzstan
Endalkachew Fekadu Volunteer Health Services Ethiopia
Fabrice Kotoko L'Association des Anciens Patients Tuberculeux du Bénin Benin
Kate O’Brien We are TB United States
Ksenia Shchenina TBpeople Russian Federation
Maurine Murenga Lean on Me Foundation Kenya
Maxime Lunga Club des Amis Damien DRC
Meirinda Sebayang Jaringan Indonesia Positif Indonesia
Olya Klymenko TBpeople Ukraine Ukraine
Paul Thorn TBpeople United Kingdom
Peter Ng’ola Wote Youth Development Projects Kenya
Rhea Lobo Bolo Didi India
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