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Organization Contact Information | |
| Name: | We Are TB |
| Street 1: | 89 Avenue of Two Rivers |
| Street 2: | |
| City: | Rumson |
| Province: | NJ |
| Post Code: | 07760-1738 |
| Country: | United States of America |
| Phone: | (973) 420-5815 |
| Organization Email: | katedagress@gmail.com |
| Web Site: | http://www.wearetb.com |
| Other Online Presence: | https://twitter.com/We_Are_TB |
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General Information | |
| Board Constituency: | Communities |
| Is your organization legally registered in your country: | No |
| If yes, please enter your registration number: | |
| Organization Type - Primary: | Non-Governmental Organization |
| Organization Type - Secondary: | Community-Based Organization (CBO) |
| Organization Description: | |
| We are a group of TB survivor advocates living in the United States working to end TB. We offer social/emotional support to those in treatment, we advocate for better funding, we provide a face to a stigmatized, underrepresented disease. We are a volunteer organization. | |
| Do you know about the UNHLM declaration: | Yes |
Specializations / Areas of Work | |
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Advocacy Civil Society and Community Engagement Engaging political leaders and ensuring inclusive leadership Working on Community, Rights and Gender (CRG) Working on Key Populations related to TB |
Other Organization Information | |
| Total number of staff in your organization: | 0 |
| Number of full-time staff who are directly involved with TB: | 0 |
| Number of part-time staff who are directly involved with TB: | 0 |
| Number of volunteers who are directly involved with TB: | 51 - 99 |
| How did you hear about the Stop TB Partnership: | Involvement in TB control provision |
| If you were informed or referred by another partner of the Stop TB Partnership please tell us who: | Timur Abdullaev told us about the directory. :) |
| Why do you wish join the Stop TB Partnership: | Network with other partners |
| Are you a member of a Stop TB national partnership: | United States of America |
| Are you in contact with your national TB programme: | Yes |
| Please tell us how your organization is contributing to your country's national TB control plan: | |
| We are a part of the National TB Controllers Association, and work with them to improve TB care in the USA. | |
Geographical Reach | |
| Which country is your headquarters located in: | United States of America |
| Which countries do you do operate in: (This includes countries you are conducting activities in) |
United States of America |
Contribution | |
| Please tell us how your organization will contribute to the Global Plan to Stop TB by briefly describing its involvement in any of the areas of work listed below: | |
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TB Care Delivery: We work with the National TB Controllers Association in the USA to ensure that TB treatment in the USA is patient centered. We feature in educational presentations and materials, we provide support to those in treatment. Drug-Resistant TB: We have several members that had or were directly affected by (their children) drug resistant TB. These members talk openly about their experiences with others and express the impact the burden of DRTB has on a person and their family, as well as provide support to those currently dealing with DR-TB. TB-HIV: We have members that are living with HIV and who also dealt with TB. These members talk openly about their experiences with others and express the special concerns of someone with a TB-HIV co-infection, as well as provide support to those currently dealing with the same. New Diagnostics: People who have TB in the USA often suffer from delayed diagnosis just like in other parts of the world. We Are TB members engage our elected officials and encourage them to support funding for new TB diagnostics and access to them for all. New TB Drugs: While drug regimens are getting shorter for people with TB, the treatment is still long and difficult, and rife with damaging side effects. We Are TB members engage our elected officials and encourage them to support funding for new TB drugs and access to them for all. New TB Vaccines: We will not end TB without a vaccine. We Are TB members engage our elected officials and encourage them to support funding for a TB Vaccine. |
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Declaration | |
| Declaration of interests: Members of We Are TB are volunteers and this limits many conflicts of interest. We have none to report at this time. | |
| Application date: | September 30, 2020 |
| Last updated: | July 14, 2021 |