Communities of People Affected by TB Delegation to the Stop TB Partnership Board
|Names||Organization||Country of Work|
|Carol Nawina (Board Member)||CITAM+||Zambia|
|Peter Ng’ola (Board Member)||Wote Youth Development Projects||Kenya|
|Rhea Lobo (Board Member)||Bolo Didi||India|
|Olya Klymenko (Alternate Board Member)||TBpeople Ukraine||Ukraine|
|Tom Rogers Muyunga-Mukasa (Delegation Focal Point)||Advocacy Network Africa (AdNetA)||Kenya|
|Thokozile Nkhoma||Facilitators of Community Transformation||Malawi|
|Abdulai Sesay||CISMAT||Sierra Leone|
|Dilshat Haitov||TBpeople Kyrgyzstan||Kyrgyzstan|
|Endalkachew Fekadu||Volunteer Health Services||Ethiopia|
|Fabrice Kotoko||L'Association des Anciens Patients Tuberculeux du Bénin||Benin|
|Kate O’Brien||We are TB||United States|
|Ksenia Shchenina||TBpeople||Russian Federation|
|Maurine Murenga||Lean on Me Foundation||Kenya|
|Maxime Lunga||Club des Amis Damien||DRC|
|Meirinda Sebayang||Jaringan Indonesia Positif||Indonesia|
|Paul Thorn||TBpeople||United Kingdom|
Carol Nawina uses her personal experience of living with HIV and surviving TB to advocate for policy change at national, regional and international levels. At national level, Carol is the Chairperson of the Zambia TB (CS) Organizations Coalition (ZTOC). At regional level, she is a founder member and past president Africa Coalition on TB. At global level, she is a current member of the UNITAID Communities Delegation and The Union Community Advisory Panel (UCAP).
Peter Ngola Owiti is the director of Wote Youth Development Projects, a youth TB/HIV advocacy organization in Makueni, Kenya. Peter is passionate about advocacy on access to life saving TB drugs and human rights globally. He currently serves as a member of Coordinating committee for Scientific Activities and Union Community advisory Panel (UCAP). He is a core group member of TB Proof, an occupational health care workers organization that fights TB stigma.
Olga Klymenko became a passionate TB activist after having TB in 2015. Her book "My inner world. Confessions of a TB patient" was on sale in Ukraine and helped people with a TB and their families. Since 2018, with the support of the Global Fund and the All-Ukrainian Network of People Living with HIV, Olga has been leading TBpeople Ukraine, the national network of people affected by TB.
Rhea Lobo is an international award-winning filmmaker, journalist and an extra-pulmonary TB survivor. She is a strong TB advocate and is the co-founder of Bolo Didi (Say Sister), an informal network of women TB survivors in India. Her film on TB, End the Taboo - End TB, is the official selection of International Social Change Film Festival 2019 in the US, the 60 Second International Film Festival 2019 and has been screened on India's national television news channel, NDTV.
Tom champions TB prevention through grassroots work among what are termed hard-to-reach communities. Tom is currently involved in TB prevention with such platforms like the Union, TB Vax Arm, STP WGNV, UK Academics and Professionals to End TB, TB Watch, TB Proof, CDC/TBTC CRAG and many others. As well, Tom is passionately engaged in ambulance services for households experiencing catastrophic expenses following a positive TB diagnosis.
Abdulai Abubakarr Sesay became a global TB and health activist after contacting TB in 2008. After being cured, Abdulai founded the Civil Society Movement Against Tuberculosis Sierra Leone (CISMAT-SL), a network that is advocating for the rights of thousands of TB and TB/HIV patients. Currently, Abdulai is a member of the Communities Delegation to the Global Fund Board, CRG Advisory Group, Africa Coalition for TB and TBpeople.
Albert Makone is a global health advocate based in Zimbabwe. His areas of work include access to treatment for TB and HIV patients and equity in human development. He has international and country-level experience, advocating for community participation in health. Albert served as a Community Representative in the New TB Drugs Working Group of the Stop TB Partnership.
Dilshat Khaitov is a TB community activist from Kyrgyzstan. A member of TBpeople, the global network of people affected by TB, and the head of “TB people in Kyrgyzsan”, Dilshat represents TB affected community on Kyrgyzstan’s CCM. In the past, Dilshat worked in MSF and USAID projects. Presently Dilshat is providing social support to former prisoners with TB.
Endalkachew Fekadu is a pharmacist, DR TB survivor, activist, journalist, author, graphics designer, and a founder of Ethiopian Drug Information Network and Volunteer Health Services NGOs/VHS in with more than 15,000 members.
Fabrice Mahugnon Kotoko is a TB survivor from the Republic of Benin. Fabrice is an active advocate of TB affected community: he is the President of the Association of Former TB Patients of Benin (ASSAP-TB / BENIN) and a community representative at the CCM of Benin.
Kate O’Brien is a TB advocate from the USA, with a background in TV production and marketing. Kate is committed to increasing the resources, funding and focus that TB receives in the USA and around the world. Kate currently works for the National Tuberculosis Controllers Association in the US, providing community engagement & support through We Are TB, a USA TB survivor advocacy organization. Kate is also a member of TBPEOPLE, the global network of people affected by TB.
Ksenia Shchenina is a TB survivor, activist and feminist from Russia. Since 2011, after she completed the treatment, Ksenia has been protecting the rights of people affected by tuberculosis. In 2016, she was one of the cofounders of the TBPEOPLE network. She coauthored TB and You, a book written by TB patients for TB patients. Ksenia believes that TB must be smashed in the root.
Maurine Murenga is a passionate advocate for the health, development and human rights of women and girls living with HIV and affected by TB from Kenya. Driven by her lived experience, Maurine founded the Lean on Me Foundation. Maurine currently serves as the Board Member of the Communities Delegation on the Board of the Global Fund, represents communities on the TB Stakeholders Association of TB Alliance and chairs the Steering Committee of Women 4 Global Fund.
Maxime Lunga is a TB survivor from the Democratic Republic of Congo (DRC). He is a TB and community, rights and gender (CRG) expert and an experienced TB community advocate active at the national, regional and global levels.
Meirinda Sebayang is a TB-HIV advocate from Indonesia. She currently chairs the Positive Indonesia Network, a national network of PLHIV in Indonesia. She is also a member of TB Indonesia Forum and a member of Indonesia CCM.
Paul Thorn is an author writing about HIV and TB and has been active in the TB arena for nearly 20 years. He is interested in the psycho-social impact of TB and believes that everyone has a basic need to be a person, not a disease. A person living with HIV and an MDR-TB survivor, Paul is heading secretariat of the global network of people affected by TB, TBpeople.
Thokozile Phiri-Nkhoma is a current Board member of the Stop TB Partnership Coordinating Board representing affected community constituency. Thokozile is a TB-HIV activist from Malawi, working for an organization called FACT. She joined the Stop TB Partnership as a community representative on the new Diagnostics Working Group in 2010. She is also part of a number of regional and global organizations working on TB and public health.